Mom of two Abby Storey is using her experience as the parent of a baby born with what is known as brittle bone disease to spread awareness and destigmatize babies who wear cranial helmets. When Abby was 28 weeks pregnant with her second child, she and husband Jordan found out that their baby has a rare genetic disorder that causes "weak bones."
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For a time, Abby and Jordan even worried that their son, Jackson, would not survive childbirth because the weakness of his chest wall would make it impossible for him to breathe. Now little Jackson is a happy 1-year-old, and while his life isn't quite the same as the average toddler, his mom isn't dwelling on the challenges but is choosing positivity and using her social media influence to inform and inspire others about her son's condition.